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Barrow Neurological Institute
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Timothy L. Vollmer M.D.
Program Director, BNI Neuroimmunology Program
Barrow Neurological Institute
St. Joseph's Hospital and Medical Center


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"MS Can Not
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"I'm an M.D....my Mom has MS and we have a message for everyone."
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Beverly Dean

"I've had MS for 2 years...this is the most important advice you'll ever hear."
"This is how I give myself a painless injection."
Heather Johnson

"A helpful tip for newly diagnosed MS patients."
"Important advice on choosing MS medication "
Joyce Moore

"OUR TEAM IS WORKING ON A CURE FOR MS"
Runtime: 54 sec
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Susan N. Rhodes
Multiple Sclerosis Research
Barrow Neurological Institute

"'The 2006 Barrow Neurological Institute at St. Joseph's Hospital MS "Walk on the Wild Side" raised more than $460,000 with 3,500 walkers! Click on the blue link above to view photos"

Chris Uithoven
President
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"THE MS SOCIETY OFFERS MANY PROGRAMS TO HELP...EVERYTHING FROM PILATES & SUPPORT GROUPS TO HORSEBACK RIDING"
Jerry Turner
Program Director
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6/27/13

 

NEW HOPE OF A MIGRAINE CURE: HUGE STUDY OF DNA FINDS CLUE IN OUR GENES

Progress: The research marks a step towards producing more effective treatment for migraine sufferers. Around 40 per cent of patients do not respond to available medication "Hopes of a migraine cure have been boosted by the discovery of genes linked to the crippling headaches. In the largest study ever to look at migraines, researchers have identified five more sections of our DNA associated with their onset.
 

They have also confirmed the importance of seven more of these ‘genetic regions’ which have previously been linked to migraines.
 

Most of them contain genes responsible for controlling brain circuitry or maintaining healthy brain tissue, while some are also linked to healthy circulation and cardiovascular disease.
 

Scientists say the research, which looked at more than 100,000 genetic samples, offers a fresh understanding of what triggers migraines.
 




read more

6/24/13

 

Chronic Conditions & Medicare: Special Needs Plan (SNP)

If you have a chronic condition, you may be able to get a special Medicare plan called a special needs plan (SNP). It's a type of Medicare Advantage Plan, also called Part C and D plan. This plan covers all of the services covered in a Part C plan and prescription drug coverage in a Part D plan.

To join a Medicare SNP, you must have Medicare Part A and Part B. You also must live in the plan's service area. Then, you may be eligible if at least one of these is true for you:
 
*You have one or more chronic conditions
 
*You live in a nursing home or need nursing care at home.
 
*You have Medicare and Medicaid
 

 

AT BIOGEN, IT'S CRUNCH TIME FOR CEO





"Since becoming Biogen Idec Inc.'s chief executive three years ago, George Scangos has helped quadruple the company's market value as expectations built for its latest multiple-sclerosis drug. Now, he is under pressure to deliver on those hopes by successfully guiding the biggest product launch of his career.
Biogen's new pill, Tecfidera, is the most-anticipated treatment for multiple sclerosis in more than 15 years, doctors say. After nearly three months on the market, prescription data indicate that the drug is on track to top analysts' estimates this year and achieve at least $1 billion in annual sales by the end of 2014. But some bumps have appeared in the road."
 
 

 

HUSBAND CHARGED WITH ABUSING WIFE WHO SUFFERS FROM MS


| The Salt Lake Tribune
First Published Jun 18 2013 10:01 pm • Last Updated Jun 19 2013 09:18 pm
A Riverton man is accused of abusing his wife, a multiple sclerosis patient who allegedly was found badly neglected with untreated sores and serious infections.
In charges filed Tuesday, police wrote that the woman, 55, was taken to a hospital May 8 for severe sepsis and encephalopathy. The woman’s body had multiple open sores, including a bedsore about 5 inches in diameter on her back and feces on her body, investigators wrote. Her bedding was stained and appeared not to have been changed for days; her catheter was clogged with pus, police wrote.
 
The woman’s children told police that her husband is her caretaker, and that he had isolated their mother from them, according to charges.
The husband, 51, was charged with aggravated abuse of a vulnerable adult, a second-degree felony.
 

 

NEW MRI TECHIQUE IMPROVES VISUALIZATION OF LESIONS IN BRAINS OF MS PATIENTS

MRI imaging of brain New MRI Technique Improves Visualization of Lesions in Brains of MS Patients


 Conventional MRI relies on measuring the amplitude of electromagnetic waves coming off of excited protons as they return to their equilibrium inside the magnetic field. Although the frequency of these signals also contains a good deal of information, it has proven difficult to create algorithms that can make sense of the data.
Researchers from the University of British Columbia led by Alexander Rauscher have been studying MRI scans of brains of multiple sclerosis patients with an eye toward spotting mathematical signatures within frequency data that can identify specific tissue types. In the journal Neurology they are now reporting that they managed to spot lesion formation in the brain using their new analysis technique. Because the new methodology doesn’t require any physical upgrades to MRI scanners, it can be easily integrated into existing systems with a software update.

More information:
Study abstract in Neurology: Magnetic resonance frequency shifts during acute MS lesion formation
UBC: New imaging technique holds promise for speeding MS research

6/23/13

 

OBESE GIRLS AT RISK OF MULTIPLE SCLEROSIS, STUDY FINDS

Obese girls at risk of multiple sclerosis, study finds

Obese girls are at greater risk of developing multiple sclerosis or MS-like illness, according to a new study published Wednesday in the online journal Neurology.
Researchers looked at body mass index (BMI) data from more than 900,000 children from the Kaiser Permanente Southern California Children's health study. Seventy-five of those children and adolescents between the ages of 2 and 18 were diagnosed with pediatric MS. More than 50% of them were overweight or obese, and the majority were girls


 



Read full story:

http://thechart.blogs.cnn.com/2013/01/30/obese-girls-at-risk-of-multiple-sclerosis-study-finds/

6/12/13

 

BUT YOUR FAMILY? DON'T YOU UNDERSTAND I'M NOT FAKING MS?!

You would think that family understands when you tell them you have Multiple Sclerosis? Right? Well it is not always the case.  Most people look at you and see nothing. Well I say, we can look at them and see nothing too! I would expect it from friends and people we meet on the street but not our own families.  Maybe they think out of sight, don't exists.

But that is not the case with us. Out of sight ,still there! Our stress levels go even higher when we face FAMILY that does not believe us. The only people that should accept us for who we are and what we are! Instead we spend time having to explain what MS is and how it is affecting us. I don't know about you but I am not spending all my energy explaining it over and over again. I would much rather spend my time LIVING LIFE!

If you can't accept it , I am sorry for you. Life is to short to dwell on your problems!


 

INSOMNIA AND MS: ARE THEY RELATED?

Where your sleep patterns erratic before the MS?  This is an excerpt from an article from WebMD:

Have I slept yet?
"Many people with multiple sclerosis complain of insomnia or broken sleep patterns, yet sleep problems may not directly be the result of the disease itself. Many sleep problems occur because of secondary factors such as stress, spasticity, inactivity, or depression that people with MS often have. Other symptoms of sleep problems may be caused by the location of MS lesions within the brain."











To read the full article :

http://www.webmd.com/multiple-sclerosis/guide/taking-control-sleep


 

IF YOU WANT TO LOOK FOR NEW TRIALS

This is a great site if you are looking for clinical trials for any disease:

http://www.trialsfinder.org

 

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