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11/29/07
I went to the MS doc and he is going to see about Avonex so I’ll only have to do 1 shot a week 
I am sooooo depressed! My doctor suspects MS...I can’t stand not having a definitive dx! 
Betrayed..It leaves me to think is there a person out there who’ll love me unconditionally? 
As you get older you start to realize more & more every day that passes how important family is 
My 2 Poems I wrote Stan: "LOST DREAMS" & "FEELING LIKE A FAILURE" 
I was wondering if anyone on here had migraines in their 20’s-I did & they told me it was becau 
my 3d Tysabri infusion-it left me feeling bad for 3 days-But I have noticed improvement 
I just had surgery today...I am in Pain Stan!!!! - Reya 
thank you for posting this question because I’m pretty nervous and upset right now 
..it was the copaxone-i got my test results back from the cardiologist-everything was normal 
I wanted to ask if anyone has had a difficult time with their Aetna disability insurance paymen 
now she says she will pray for her angels because they helped her... 
my advice to any of y’all looking for a job: do NOT tell them about MS 
i am afraid his MS is causing him to feel that he will never be able to achieve his dreams 
[UPDATE]....the nurse said that i wont notice any good effects from tysabri for approx 6 months 
I am a happy, it’s just that I am also filled with anger, confusion, fright, hurt - Jess 
So please pray for us that they send us some place nice - Lisa 
"MS Attack" by itlgoddess 
I had my first neuro appointment today..he is sending me for a lumbar puncture, a nerve.... 
JUST GOT MARRIED IN DECEMBER TO THE LOVE OF MY LIFE - AMBER 
ORAL LAQUINIMOD FOR RELAPSING-REMITTING MS 
Heres an update on the crap that happened to me on copaxone - Alyson 
life is like hell without FRIENDS. 
I WANT TO ASK YOU AND THE ANGELS TO PRAY FOR MY FATHER-IN-LAW AND FOR STRENGTH FOR ME 
so am i being totally stupid or what because im sorry but my dad brought me into this world 
It will be nice to talk to someone who understands living with MS. 
I just wanted to let everyone know I finally got my hearing for my disability with the Judge 
Prayers are needed for my granddaughter Cynthia..I would like to have all the angels prayers... 
ever have a problem that you need to solve and you just don’t know how? And as an MSer you.... 
Between insurance and this program I should no longer have to pay for my shots - Teri 
It’s not easy having MS. You never know what’s going to happen. You can’t plan anything.... 
"Multiple Sclerosis Hug or Girdle-Band Sensation" 
my copaxone auto-injector arrived today..so now i need to call back my copaxone nurse.... 
I am mad sad and depressed..I am tired of hearing look on the bright side..I hate the holidays 
I love this community! Everyone is so full of support for each other 
I JUST WANTED TO SHARE THIS POEM THAT I WROTE - Amber 
I told you all when I was pregnant, and I kept you all updated all through the pregnancy -JENN 
Happy Birthday Dad! I miss you - Karyn 
Stay strong and even stronger when you can’t! 
Common antibiotic tested as treatment for multiple sclerosis...minocycline pills
I have MS too - Pam
No one should go to their results appointment alone & to a neurologist with poor bedside manner
I hope for the best and pray everyday that I’ve seen the worst of this MonSter!
I beat social security!!!! - LISA
I have to jump in the shower and head over to the ER for day 2 of my IV steroids.
I’ve been feeling well enough to be performing in the chorus for a local theater group.
Update ~ It is still hard for me to believe that I was diagnosed exactly a year ago today
Update ~ WITH THE PAIN & HELPLESSNESS I HAVE FELT HAVE MADE ME QUESTION WHAT’S THE POINT IN ALL OF THIS
Too Bad my neuro did not take me seriously 3 frickin’ months ago!
I need some hugs & prayers..I feel horrible, I love my parents to death..without them I’d be...
my mom has ms and she has had this for 7yrs...She talks about death everytime i am with her
I Can’t Take Anymore....I am sitting here in bed because of having my 4th spinal tap in 2 years
I have already let this asshole kick my MS into gear....I am going to quit smoking
xxoxoxoxoxoxo to stan and hugs to all the angels!! YOU ALL ROCK!
I sit here crying over my keyboard, my heart & life shattered into small peices - Michael
I dont know how to tell my new boyfriend that i have MS...and that i dont want sex tonight
for years i have been wanting to get a tattoo
im scared stan...Ive been having a reaction to copaxone for like the last 6 nights
Just got home from my 14th Tysabri infusion little while ago...
Oh my fucking god!!!!!!!!! Guess what happened now.
Working my fucking life away-FOR NOTHING-I’m not getting anywhere
I love the postings for needed hugs..I am ALWAYS available for a hug & a prayer - Sandee 02
I’m having my 1st neuro appointment on Wed-I was trying to figure out what questions to ask
{TYSABRI}....."Have others felt really bad after their infusions: fever, sweating, and..?" TINA
"Angel Mommies" Written by me for all the angel mommies - REYA
I have gone into remission from this whole multiple sclerosis thing. I am STILL in remission!!
This is the month of Halloween, tricks or treats and my body is going through the same thing...
Just wanted to let everyone know that I was able to get into the DR. today Stan...
Blackbird’s 35th birthday was yesterday...look at this wonderful photo of Blackbird & Jayden
Here’s a few of our Friends who are having birthdays in the next week - Stan
I had my 9th infusion of Tysabri yesterday and I feel like shit today!!! - Bill
I’m new to MySpace & wanted to find new friends with MS, seems like I’ve hit the jackpot
i know my ms is starting to flare up because im starting to forget where things are - KEY
I never thought Id write you feeling this way...I need a hug from ppl who actually get it...
Please pray for our little girl-Rachel, my 4 year old was admitted to the hospital yesterday
MS is like living in New England, you never know what the weather will be from minute to minute
i havent had ms myself long just over 18 months but my dad has had it for over 20 years
8 miles from where we grew up they were doing radioactive testing-Does anyone have similiar MS
I am a little nervous about giving myself the shots; I’ve never given myself shots before
I would not be as improved as I am without Tysabri but, it has it’s limits... it is not a cure!